The Bonnie J. Addario Lung Cancer Foundation Joins Forces with Patient Advocate Group to Advance Care for People with EGFR-Positive Lung Cancer

The Bonnie J. Addario Lung Most cancers Basis (ALCF) and the EGFR Resisters, a patient-driven neighborhood of individuals residing with epidermal development issue receptor (EGFR) optimistic lung most cancers and their family members, are working collectively to boost funds and improve consciousness of tasks that profit the EGFR neighborhood.  “ALCF was founded to bring lung cancer patients into the conversation,” stated Bonnie J. Addario, 14-year lung most cancers survivor and ALCF founder. “We exist to support patient collaboration, and our partnership with the EGFR Resisters is a perfect example of that principle in action.” EGFR gene mutations are generally present in sufferers with non-small cell lung most cancers, making as much as 15 p.c of sufferers in the US and 35 p.c of sufferers in Asia. Whereas lung cancers with the EGFR mutation typically reply effectively to particularly focused therapies, sufferers generally purchase resistance as further genetic mutations develop that block the remedy’s advantages. The frequency of this cycle of remedy response adopted by resistance is propelling researchers to search for new remedies that overcome remedy resistance.“We’re excited about the possibilities this collaboration offers,” stated Ivy Elkins, one of many EGFR Resisters founders and an advocate for lung most cancers sufferers. “My hope is that patients around the globe will join forces with the EGFR Resisters to create a strong collective voice in support of research. Working with ALCF strengthens our voice and extends our reach into important corridors of medical research and funding.” Combining the efforts of ALCF and its analysis arm, Addario Lung Most cancers Medical Institute (ALCMI), with the affected person advocacy of a number of hundred folks across the globe who’ve come collectively to kind the EGFR Resisters will allow better outreach to acquire analysis funding. The initiative additionally raises consciousness in regards to the sufferers who’ve donated data and tissue samples. It gives researchers with a channel to recruit volunteers to take part in medical trials for brand spanking new therapies. “Patients who are EGFR positive are a unique subset of lung cancer patients,” stated Pasi A. Jänne, M.D., PhD., EGFR Resisters medical advisor, director of the Decrease Heart for Thoracic Oncology at Dana-Farber Most cancers Institute and a professor of drugs at Harvard Medical Faculty. “Many patients with EGFR enjoy a dramatic response to targeted therapy, followed by a profound letdown when the therapy stops working. Through this partnership, we can help to replace that disappointment with hope.”  Concerning the Bonnie J. Addario Lung Most cancers Basis The Bonnie J. Addario Lung Most cancers Basis (ALCF) is without doubt one of the largest worldwide philanthropies (patient-founded, patient-focused and patient-driven) devoted solely to eradicating lung most cancers via analysis, early detection, training and remedy. The muse’s objective is to work with a various group of physicians, organizations, trade companions, people, sufferers, survivors and their households to determine options and make well timed and significant change and switch lung most cancers right into a chronically managed illness. ALCF has raised greater than $30 million for lung most cancers analysis and associated packages. The muse has acquired 4 stars from Charity Navigator and has earned the platinum GuideStar nonprofit seal of transparency. For extra details about ALCF please go to or observe us on Fb or Twitter. Concerning the Addario Lung Most cancers Medical InstituteThe Addario Lung Most cancers Medical Institute (ALCMI, voiced as “Alchemy”), based in 2008 as a 501c(three) nonprofit group by lung most cancers survivor Bonnie J Addario, is a patient-centric, worldwide analysis consortium driving analysis in any other case not doable. Working in tandem with its “partner” basis, the Bonnie J. Addario Lung Most cancers Basis (ALCF), ALCMI powers collaborative initiatives in genetic (molecular) testing, therapeutic discoveries, focused remedies and early detection. ALCMI overcomes limitations to collaboration through a world-class group of investigators from 26 member establishments within the USA, UK, and Europe. ALCMI combines scientific experience discovered at main educational establishments with affected person entry via its community of neighborhood most cancers facilities to speed up analysis. Study extra at alcmi.internet. About EGFR ResistersEGFR Resisters is a grassroots, patient-driven neighborhood devoted solely to altering EGFR-positive lung most cancers right into a manageable persistent illness. Our neighborhood of survivors and caregivers is made up of a whole lot of members from 24 nations who profit from sharing data and connecting with others who’re experiencing related journeys. The group’s goal is to make use of the ability of collaboration to drive essential analysis questions and fund novel analysis and medical trials. Study extra at and by following us on Fb and Twitter.


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